WEBVTT NOTE language:en-US NOTE Confidence: 0.8826906085014343 00:00:01.200 --> 00:00:04.943 Having to deal with dialysis altogether is difficult for anyone, NOTE Confidence: 0.8826906085014343 00:00:05.002 --> 00:00:08.161 and then to be someone autistic or with Down syndrome, NOTE Confidence: 0.8826906085014343 00:00:08.220 --> 00:00:10.560 I knew it was going to be scary for him. NOTE Confidence: 0.8519492745399475 00:00:10.600 --> 00:00:13.360 Justin has been diabetic since age 3. NOTE Confidence: 0.7517098188400269 00:00:13.440 --> 00:00:14.640 He's mostly non verbal. NOTE Confidence: 0.9075464010238647 00:00:14.920 --> 00:00:18.587 Nobody would take Justin and we got the call and NOTE Confidence: 0.9075464010238647 00:00:18.663 --> 00:00:21.566 we said yes we can and we are here and NOTE Confidence: 0.9075464010238647 00:00:21.642 --> 00:00:23.400 we care the Devita way. NOTE Confidence: 0.7303798794746399 00:00:23.440 --> 00:00:27.588 I heard this story that was inspired by everyone's behaviour, NOTE Confidence: 0.7303798794746399 00:00:27.656 --> 00:00:28.200 frankly. NOTE Confidence: 0.8574247360229492 00:00:28.360 --> 00:00:30.880 Our team, your family, your commitment. NOTE Confidence: 0.9001307487487793 00:00:37.159 --> 00:00:40.170 We didn't really quite realize how serious it was, but NOTE Confidence: 0.9001307487487793 00:00:40.226 --> 00:00:42.958 then things did change within a year or two where NOTE Confidence: 0.9001307487487793 00:00:43.014 --> 00:00:44.519 it progressively got worse. NOTE Confidence: 0.9211305975914001 00:00:44.560 --> 00:00:46.788 We had to go into the hospital for a whole NOTE Confidence: 0.9211305975914001 00:00:46.841 --> 00:00:47.159 month. NOTE Confidence: 0.918251633644104 00:00:47.160 --> 00:00:50.600 Then he was discharged and said they needed dialysis. NOTE Confidence: 0.7040491104125977 00:00:50.640 --> 00:00:53.860 For a Down syndrome child, That that that's that's pretty NOTE Confidence: 0.7040491104125977 00:00:53.917 --> 00:00:54.199 huge. NOTE Confidence: 0.9398546814918518 00:01:01.600 --> 00:01:03.760 His first treatment was challenging. NOTE Confidence: 0.9524846076965332 00:01:03.760 --> 00:01:06.257 It was important for me to try to get on NOTE Confidence: 0.9524846076965332 00:01:06.319 --> 00:01:09.566 his level and understand how scary this might be for NOTE Confidence: 0.9524846076965332 00:01:09.629 --> 00:01:12.813 him and just take my time getting him accustomed to NOTE Confidence: 0.9524846076965332 00:01:12.876 --> 00:01:16.435 me, knowing my name, understanding like hey, I'm here for NOTE Confidence: 0.9524846076965332 00:01:16.497 --> 00:01:19.120 you, I'll protect you, I'll keep you safe. NOTE Confidence: 0.9274954199790955 00:01:19.200 --> 00:01:21.898 I met him on this first day with his mom, NOTE Confidence: 0.9274954199790955 00:01:21.963 --> 00:01:23.279 came in very scared. NOTE Confidence: 0.7716049551963806 00:01:23.440 --> 00:01:25.200 He was, you know, very standoffish. NOTE Confidence: 0.8870906829833984 00:01:25.200 --> 00:01:27.139 She didn't want us to touch him or come near NOTE Confidence: 0.8870906829833984 00:01:27.183 --> 00:01:27.359 him. NOTE Confidence: 0.8423329591751099 00:01:27.360 --> 00:01:29.891 We placed him in an area where he'd have privacy NOTE Confidence: 0.8423329591751099 00:01:29.944 --> 00:01:32.370 and also we brought back mom so we could teach NOTE Confidence: 0.8423329591751099 00:01:32.423 --> 00:01:34.480 mom about CVC care and what's going on. NOTE Confidence: 0.9430250525474548 00:01:34.480 --> 00:01:36.976 I really felt when I came in, everybody was warm NOTE Confidence: 0.9430250525474548 00:01:37.028 --> 00:01:39.160 and I felt like I was in the right place. NOTE Confidence: 0.864615797996521 00:01:39.200 --> 00:01:41.967 I could tell the caregivers were key people that really NOTE Confidence: 0.864615797996521 00:01:42.017 --> 00:01:44.079 supported him through this whole process. NOTE Confidence: 0.7350835800170898 00:01:44.240 --> 00:01:46.917 I'm so grateful for them because they really connected with NOTE Confidence: 0.7350835800170898 00:01:46.962 --> 00:01:47.279 Justin. NOTE Confidence: 0.8040127754211426 00:01:47.440 --> 00:01:54.012 Eventually practising empathy, patience that worked into him trusting me NOTE Confidence: 0.8040127754211426 00:01:54.103 --> 00:01:54.559 more. NOTE Confidence: 0.09116750210523605 00:01:58.040 --> 00:01:58.160 None. NOTE Confidence: 0.8068174719810486 00:02:02.040 --> 00:02:04.152 It was really a joy to know that he was NOTE Confidence: 0.8068174719810486 00:02:04.206 --> 00:02:05.560 getting a kidney finally. NOTE Confidence: 0.92217618227005 00:02:05.640 --> 00:02:09.528 He got a transplant and it's actually working and he's NOTE Confidence: 0.92217618227005 00:02:09.600 --> 00:02:13.272 hugging everyone and, and so that makes me happy to NOTE Confidence: 0.92217618227005 00:02:13.344 --> 00:02:15.360 see that he's doing so well. NOTE Confidence: 0.813110888004303 00:02:15.400 --> 00:02:17.373 We actually was a big part of his journey and NOTE Confidence: 0.813110888004303 00:02:17.417 --> 00:02:19.917 we learned from that and that encouraged us as healthcare NOTE Confidence: 0.813110888004303 00:02:19.961 --> 00:02:20.399 providers. NOTE Confidence: 0.8289294242858887 00:02:20.560 --> 00:02:23.661 The easy answer would have been sorry, he's a very NOTE Confidence: 0.8289294242858887 00:02:23.723 --> 00:02:26.949 difficult case, but the emotion and and you feel the NOTE Confidence: 0.8289294242858887 00:02:27.011 --> 00:02:30.609 love, you feel the surrounding, you feel the support here, NOTE Confidence: 0.8289294242858887 00:02:30.671 --> 00:02:32.160 you feel the confidence. NOTE Confidence: 0.8568878173828125 00:02:32.440 --> 00:02:36.018 Just very grateful for DaVita for making this a success NOTE Confidence: 0.8568878173828125 00:02:36.083 --> 00:02:38.360 story for him after the transplant. NOTE Confidence: 0.976340651512146 00:02:38.360 --> 00:02:40.956 He's been saying I love you, I love you all NOTE Confidence: 0.976340651512146 00:02:41.016 --> 00:02:41.560 the time. NOTE Confidence: 0.9649425745010376 00:02:41.600 --> 00:02:44.160 And then he's saying I'm happy, I'm happy. NOTE Confidence: 0.7224875092506409 00:02:44.200 --> 00:02:47.040 Just like basking in all of this love. NOTE Confidence: 0.1464160531759262 00:02:47.400 --> 00:02:47.520 His. NOTE Confidence: 0.5856460332870483 00:02:48.880 --> 00:02:49.960 His health and everything.